Sometimes I don’t want to be girlfriends…or do I?

Revlon

A funny thing happened on the way to stage IV. Back in 2011, when I was dealing with a fairly contained case of the breast cancer (minus, of course, infected lymph nodes and a larger than comfortable mass), I faced that challenge as if it were a limited period of time, after which cancer would be in my rear view mirror…permanently.

The Universe had other plans though and now I am chronic. I won’t say terminal although I think about it that way sometimes (Probably best to shift that mindset eventually).

When everything started, I resisted support groups – actually I went to a couple and never went back. I turned away opportunities to talk about what was going on…when I was bald, a woman came up to me at a Starbucks, and asked about treatment. Granted it was not the most appropriate way to approach a stranger but, looking back, she was probably trying to forge sisterhood with someone who understood.

In those days, talking about cancer with people who had cancer was not uplifting. Every time I connected with someone who was going through something similar, it felt like I was connecting with the disease. And, my God, I wanted to be normal.

Now I feel less normal or, at least, like I have to shift my concept of normal. I used to forget I had cancer for long stretches of time and now it’s most of what I think about. My guess is I’m still in shock. It’s been 6 months since I found out about the recurrence and I’ve been surfing the waves of grief for all that time, hitting everything from denial, anger, bargaining, depression…so now I’m ready for a little acceptance. The hope is that writing this blog will assist in that shift.

EverythingLeadsToThis already symbolizes a significant change from the first time around…I’m writing about cancer and my experience. I’m talking about this thing I didn’t want to talk about, which means I am now open to finding a sense of community. In fact, it’s something I’d like to find. And as much as I don’t want to want that, there it is.

Finding my voice

coffee

I went to a conference today and had to leave after an hour of trying to stay cheerful and upright. It was nice to be around people but the hot flashes, combined with the post surgery pain and whatever aches I feel from my medication was enough to make me call it early. I also have a vocal cord issue because of everything which makes it hard to speak. Which, after all is said and done, is the real reason it’s hard to be in group of people.

The lost voice – which is from cancer growth pushing up against the nerve that enervates the voice box – is probably the hardest thing to deal with. It’s been horse to completely gone for over 5 months. And it’s something I can’t hide. It’s also something I have to wait to address.

What makes it so difficult to bear is that it’s almost a metaphor for a lifelong struggle: finding my voice. This voice I’ve been looking for in my writing, in my career, my relationship. I talked about my issues with following my bliss here. So for that reason it’s been tough to be consistent enough to hone in on a creative voice. In my primary relationship I find it hard to speak up for myself sometimes (although in other relationships I don’t seem to have that problem).

The purpose of this blog is to spill. To say things that are stuck in my head. It’s as weird to think that people will read my thoughts as it is to think that no one will read them. Finding a voice is great but if no one is listening then it’s like that tree that falls alone in the forest. Which, again, is a big reason I left the conference yesterday. Because, even in a forest filled with trees, I felt like the one tree that made no noise as the wind circled my leaves. And I don’t want to be a lonely tree.

Irresponsible dummies

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I try not to focus on the past. Letting go of the doctors that misdiagnosed me – and there were a few – has been an important part of healing for me. From the OBGYN in 2005 who said I was too young to have Cancer to the Thermographer in 2011 who said that, based on her heat sensing test, my growth was benign. And that was about a week before I found a lump under my arm that turned out to be lymph node involvement.

Obviously I still harbor some resentment. It’s tough to feel let down by people you trust to look out for your best interest. When I reflect on my journey to this point, I ask myself why no one ever recommended a mammogram. Why would getting more information have been a bad thing? I already addressed in this earlier post that I was afraid of Western medicine and found people to support that fear. So some of the blame falls squarely on my shoulders.

But I’d like to move on from blame, towards doctors and towards myself. Constantly looking in the rear view mirror will only make me crash the car I’m trying to drive forward. Also anger and blame seem to generate more anger and blame rather than run its course. And I have enough new anger to not have to deal with the old stuff.

So I’m using this post as a package to the Universe. A way to hand over ill feelings to those that failed me and to myself. And as for the title of this post, it’s my way of staying true to the imperfection that makes me human.

Getting sick to get better

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I’m on an awesome cocktail of medications to shut down hormone production. At least that’s the nutshell version. I’m also on a brand new drug that stops cancer cells from multiplying. So far it’s shown a lot of promise in my scans. And it’s great when I can take it. Problem is it depletes my white blood count and makes me feel pretty awful. So there are times I have to come off the drug that may be the most effective part of my treatment.

This is the thing with cancer treatment that sucks. You feel fine (except my experience with stage IV is a little different because of the bone mets. Bone mets hurt) and then along comes treatment to make you sick to get better. I wish I could drop some wisdom as far as this is concerned but it’s more an observation than anything else.

What’s confusing is identifying what is cancer discomfort versus side effect pain. Like I said, bone mets can hurt. I had a lesion in my hip that made it impossible to walk until I had radiation. The course of radiation was long (10 days) and the field was large (most of my pelvis and part of my spine). Needless to say, my gut got affected so I had bowel symptoms along with the standard radiation side effects, like fatigue.

Why I’m bringing this up is because I am choosing to suffer through all of this with the hope that I get better. And to me, that means two things. One, I’d like to feel better. Have a day where I feel normal again. Go to the gym. Take a run without pain. And two, maybe if I can wait it out for a few years, a cure will show up and I can really get rid of this thing.

So here’s to getting sick to get better. Or just to plain getting better.

From Eastern vs. Western to Eastern and Western

sage

Prior to my 2011 diagnosis, I spent considerable time futzing with doctors who said I was fine and steered me away from the mammogram. The first visit was in 2005 to my OBGYN, who felt the pea sized mass I was worried about. He told me I was too young to have breast cancer and I was fine (I was 33 at the time).

I’d like to say all of this is his fault because my life would probably be different had I caught everything that early. But the truth is I walked around afraid of Western medicine for a long time. I looked for healers and doctors who also shied away from traditional modalities or who supported my intentional blindness to what was to come.

Even so, from most of those practitioners (minus the lousy OBGYN), I learned how to connect to my body in a different way. Through Ayurveda, I learned how to eat for the seasons, and for my body type. From Chiropractic, I was able to tap into certain muscle groups and improve my gait. My workout regimen got better. Actually I embarked on a workout regimen at all. Acupuncture helped with stress management.

So while I walked into this journey late for the party and terrified of traditional medicine, I did have the sense that my body and I were a team. Something I might not have felt in 2005. This doesn’t mean I’m happy it took an extra 6 years to get diagnosed. Or that there aren’t times when I want to give up, drop this body because of the pain. But it does mean that I now know the difference between diagnostics and support. It also means that I am conscientiously throwing everything at this disease with the hope that something will work. Stay tuned for the results…

Not living life to avoid death?

purpose

I always thought that when someone got hit with a terminal illness or had a near death experience, they were catapulted into another gear. The epiphany was “life is short” so they’ll go after their passions with every fiber of their beings to make a mark.

So far this has not been my experience. I am tired rather than driven. The physical fatigue makes sense, sure, but I actually feel blocked from identifying my passion. Blocked from tapping into a life force energy that is always there for anyone to access.

This has brought me to the realization that somehow I equate achievement of life purpose, completion of life goal with completion of life. And I am not ready to die. Admittedly, this is a highly flawed belief pattern and assumes a singular life goal, ignoring the journey all together. So while I’m busy avoiding my passions (and death to some degree), I don’t get to revel in the moments that actually make up the life I choose to live.

Therefore I am writing this blog. To ward of moments of stagnation. To share things like this that plague me with the hope that getting them out of my head will allow me to move on from this loop that only ails my search for meaning…